Yesterday we had our follow-up with Dr. Bauer. He was very pleased with the swelling on the outside. It looked much better than he anticipated. There is a pool of blooding the inside of the ear that is not coming out. He wants to give it a month and if it is still there he will need to put her to sleep again to get that out in order for the area around the electrodes to heal properly. Also, he cleaned out her other ear while he had her in surgery last week. He told us then that we were going to have to address a more long-term solution for that ear because it is basically a breeding ground for the tumors. Yesterday, only 8 days later there was already stuff back in that ear. We will talk more about what options when he sees what he needs to do to the implant ear. He seemed confident he would have to take her back to the OR to get that drainage out. Obviously this would be a little set back but we are trusting God! She has felt much better yesterday and today! He said he was not surprised by her recovery being slow based on what all he did. Equilibrium still seems to be the biggest issue but we are seeing positive progress!
We left his office and headed to Audiology. Thankfully this appt was mostly for A and I so that was a relief for Sallie! We got the device and all the gadgets that come with it. We learned about each piece and more info on how it works, taking it apart, putting it together, troubleshooting, care, who to call for what, and filled out tons of paperwork. Honestly, I am quite overwhelmed by it all. We also discussed more in depth her programs and the "plan" for moving through those. I know it will soon be second nature to us but right now it makes me tired just thinking about it. We should be good to go for activation on June 28th based on how well her swelling looked. This is a major plus because our ENT felt he would have to monitor that weekly for a while. Praise God!
I was a little concerned Sallie would not be able to make the trip to AL but I think based on the last couple of days she will be good! Progress, no matter how small is a great thing. I feel like we haven't seen much lately and it gets to you. Although, I know we have and our God has been there every step. I just have not felt like myself. Just kinda going through the motions. I am hoping a change of scenery will help!
I forgot how easy 1 child is, even if that child is sick and needy! It is sure quite around here! The girls are having a blast and being SPOILED! I may never straighten them out! I am just thankful they are loved and for the time and energy our families have given to them!
Sallie leaving audiology with the goods! We have to take the briefcase to every appt. It holds all the external components! See why I am overwhelmed!
Wednesday, June 13, 2012
Progress!
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Wednesday, June 13, 2012
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